Lupron Survey - Have You Used Lupron?
Sunday August 10, 2003
Women's Health Forums: Have you been on Lupron therapy?
What side effects from Lupron did you have?
What was the most bothersome side effect of Lupron?
Was your pain relieved while on Lupron?
How long did it take for pain
to return after Lupron?
Do you have any negative side effects that persist even though Lupron treatment has ended?
Would you recommend Lupron therapy to someone else?
Would you use Lupron treatment again?
Do you feel the relief Lupron treatment provided was worth the side effects? Has your doctor ever recommended or prescribed Lupron therapy?
Comments
I was on Lupron for nine months about years ago. I have systemic yeast infections, swollen lymph nodes, sudden depression, severe IBS, anxiety, and a loss of self worth. I highly do not recommend this medication. The first day of my period is still so painful that I am curled up in a ball. Lupron only added to my symptoms list and made my physical, and emotional pain worse. Now my doctors tell me I was misdiagnosed and I never needed to be on the Lupron in the first place. My endometriosis pain is extremely high. The Lupron only made me worse.
I HATE LUPRON. MY LIFE HAS BEEN A NIGHTMARE SINCE I HAD THE INJECTION. DON’T EVER TAKE THIS MEDICATION. WARNING!!!!!!!
Lupron has been nothing but a nightmare…I dont even know why its on the market…or WHY dr’s are still prescribing this awful drug!!! I wish I never took it, it made me feel worse-I actually contemplated suicide- it was horrible- and noone including my dr’s would beleive me….and now i have been off this horrible thing for 3 months and as far as my mucsle and joint pain- still have it- my hair still falls out… and the depression never left and there are times I still have the anxiety attacks….if you never been on this terrible horrible drug- dont do it-its not worth it….tell your dr’s no!!!!
I feel like my doctor does not understand the level of pain I am experiencing after the lupron shot for my endo. I feel like I am in labor and my lower back hurts something terrible. I cant focus and I am completely out of the 30 rx for tramadol for which I was prescribed 2 weeks ago. That is 2 tramadols a day when I thought I would only need it once a day
I’ve been on it for 5 months, and not getting the last one. My life has been miserable, specially these last 3 months. NO ENERGY AT ALL! That’s the worst side effect. Also I’ve had night sweats, mood swings, pain in my body, NO SEX DRIVE, dry skin, weigh gain but with the ad-back-therapy these side effects have improved. A week after each shot, my life is put to a hold for 3 weeks, sometimes I cannot drive my car or walk in the mall, this has been terrible and I’m not willing to live like this for one more month.
I am supposed to go to my doc tomorrow for my first Lupron shot. For 4 years, I’ve been in horrible pain, bleeding every 2 weeks for 7-10 days at a time….it’s affecting my life. I cant work, I’m afraid to leave the house in fear that I will start bleeding that day or double up in pain. I had sugery in Feb. 2008 to remove a tumor on my right ovary, and my right fallopian tube was removed with a large tumor inside. (ovary still there). My old doc claimed that I should have no more problems now, but I still do. In fact, the pain and bleeding have only gotten worse. I am afraid to take the Lupron (just started seeing a new doc and this is what he recommended)…I’ve been begging my old doc (and new doc) now for a hysterectomy…I honestly feel in my heart that this is the only thing that will help me. None will agree. (I am only 30…but I’m sick of living like this!) But the new doc says this Lupron is the very last resort before surgery. I’m not sure if I should take it, expecially reading all these things about it, and it is only a temporary cover up for the real problem anyway. Please give me some advice!!
(Age: 35)- I recently had a laparacopy for an Ovarian “mass”. It was discovered I have severe endometriosis. I’ve never had any symptoms. (Apparently, some with severe endo. have little to no symptoms at all; while some with mild endo. have severe symptoms.) I’m on the 3-month injections- due for my 2nd in a few weeks. I’m on the add-back therapy. I have had the following symptoms: Night sweats(must change shirt at least once a night), lack of energy (although it’s possible the weather may contribute to that), increased appetite, insomnia-(I can fall asleep, but wake up after 2-3 hours ready to run a marathon-thank God I discovered Tylenol PM!), and more recently yeast infections. I don’t think this is a terrible medication, like some. I’m not on it for “pain” – as I’ve never had any. Rather, I’m on it in an effort to curtail some of the endo. before I try to have a child (by assisted methods)-before having a recommended hysterectomy.
After an ultrasound,my doc realize I had 2 larde fibriod tumors .He put me on lupron…I’ve completed my 6mths treatment in dec and as at now(feb)has not menstruated.my doc told me the lupron would shrink the the fibriod so it wld be easier to remove whaatever will be left by surgery.I’ll be seeing him in a week to fix a date for the surgery.I need advice…
Ive been on Lupron for 5 months, and for the most part things have been great. I have severe pain from endo, to the point where I would miss work 1-3days a month (given 12 sick days a year). I had the surgery in 2006, which did not help at all. since then until lupron my Doctor was giving me percacet for the pain, which Im not supposed to drive on, and if I didnt take the percacet at the right time, it was too late to work which I would end up in the ER with morphine. The hot flashes are bad on lupron but its a lot better than having to live a life on pain killers and in the ER, missing work constantly and social/family events. I recently started not being able to sleep at all, so I am considering the add back therapy…I dont want to go back to a life where the endo controlled my life by being in constant pain, but I also cant live a life without sleep. Does anyone think the add back therapy will prevent my insomnia?
First shot was fine. A little depression, a bit of fog. 3 weeks after the second shot I started getting bad headaches and I’ve lost some vision. My blood pressure went up.
Not to bad, but glad I’m not taking any more
I had good results with lupron. I have just went in for my second shot. I have not gained any weight (yet). I do not have reoccouring pain. My back pain has releived by at at least 70%. My extremely heavy periods have come to a stop, thank GOD!! I have yet to experience bad side effects of this treatment.
I did 3 months of Lupron for endo. I was 16 at the time and had several side effects. I had frequent hot flashes, insomnia, mood swings, anxiety, difficulty consentrating and fatigue. However, I think I made the right decision and I would do it again if I had to. Before the lupron my pain was just getting worse and worse and I was forced to take NSAIDs most of the time which just made my brain fell cloudy, dizzy and tired. But now I’ve only had pain 3 times in the past 4 months and I feel GREAT!