Where Can People Find More Information on Lichen Sclerosus?
- National Institute of
Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Information Clearinghouse
National Institutes of Health
1 AMS Circle
Bethesda, MD 20892-3675
301/495-4484 or 877/22-NIAMS (toll-free)
TTY: 301/565-2966
Fax: 301/718-6366
This clearinghouse, a public service sponsored by the NIAMS, provides information on arthritis and musculoskeletal and skin diseases. The clearinghouse distributes patient and professional education materials and also refers people to other sources of information.
- American
Academy of Dermatology
930 North Meacham Road
Schaumburg, IL 60173
847/330-0230 or 888/462-DERM (3376)(toll free)
Fax: 847/330-0050
This national professional association for dermatologists provides patient information and referrals to dermatologists.
- American
College of Obstetricians and Gynecologists
409 12th Street, S.W.
P.O. Box 96920
Washington, DC 20090-6920
202/638-5577
Fax: 202/484-5107
This professional association provides referrals to gynecologists and has patient education materials.
- American
Urological Association
1120 North Charles Street
Baltimore, MD 21201
410/727-1100
Fax: 410/223-4370
This professional association provides physician referrals to urologists through its Web site. Many public libraries now provide access to the World Wide Web. Ask a librarian for assistance.
- National
Vulvodynia Association (NVA)
P.O. Box 4491
Silver Spring, MD 20914-4491
301/299-0775
Fax: 301/299-3999
This association provides information and support to women who have vulvovaginal pain, including pain caused by lichen sclerosus. The NVA maintains a network of support groups or support individuals throughout the United States, in Canada, and in Europe. The association also publishes a newsletter.
Acknowledgments
The NIAMS gratefully acknowledges the assistance of Alan Moshell, M.D., NIAMS, NIH; Libby Edwards, M.D., Wake Forest University School of Medicine; and Harriet O’Connor, National Vulvodynia Association, in the preparation and review of this fact sheet.The National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), a part of the National Institutes of Health (NIH), leads the Federal medical research effort in arthritis and musculoskeletal and skin diseases. The NIAMS supports research and research training throughout the United States, as well as on the NIH campus in Bethesda, MD, and disseminates health and research information. The National Institute of Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse is a public service sponsored by the NIAMS that provides health information and information sources. Reproduced from the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMA)
